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Pam Johnston's avatar

Thank you for this, Sue. I'm just beginning to learn how to love the life I'm living with a husband who has early-onset dementia. For instance: since I'm the only person who CAN make decisions in our household, I get to make any decision I want--without the need for negotiating or justifying it. I haven't been able to do that for 36 years! I would never have chosen this life, but I'm finding things to love about it nevertheless.

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Sue Deagle's avatar

Pam, thanks for sharing this. I used to call myself the DESPOT of my household because I was mad with the power of single parent decision making!! It was a way I could bring some lightness to my disaster at first, but over time it became so empowering. My heart goes out to you as make the most of this life you never chose.

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Searching for the Words's avatar

I can't tell you what this meant to me Sue, to read this this morning. In fact, I’m going to print it off and tuck it somewhere so that I discover it again and again and again. (I am caring for my husband of 40-years who lives with a rare and aggressive form of dementia, and while I wouldn't choose to be anywhere but at his side, I never would have chosen this.) Thank you for sharing this wisdom!

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Sue Deagle's avatar

Thank you for sharing your story with us! Sending warmth your way…

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Sheryl's avatar

Thanks for this, Sue. I wrote a lovely response and the app ate it. Alas. But thank you.

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Sue Deagle's avatar

Thanks Sheryl, the app can be like that…but I hear you!

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Stephen Baurhenn's avatar

Enjoyed this, and glad you are enjoying as well! Hearing your journey adventures lightens everyone’s day!

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Sally Falkner's avatar

Reading your column at dinner this eve, Sue. Thank you for sharing your life with us.. You make us all want to hum!

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Sue Deagle's avatar

So thrilled to be part of your life in a tiny way Sally! I’ll keep humming over here! ❤️

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